Dr. Catherine Quinn,Associate Professor
Information about Dr. Catherine Quinn at the University of Bradford.
- Centre for Applied Dementia Studies
(Faculty of Health Studies) - Email:
- c.quinn1@bradford.ac.uk
- Telephone:
- +44 1274 236593
Biography
Dr Catherine Quinn is an AssociateProfessor at the Centre of Applied Dementia Studies at the University of Bradford(https://www.bradford.ac.uk/dementia/) where she teaches modules on post-diagnostic support for people living withdementia. Catherine is currently Co-PI on the DYNAMICstudy which focuses on improving social care planning and provision forpeople with young onset dementia and their families. She is also a member of the NIHRPolicy Research Unit in Dementia and Neurodegeneration (DeNPRU Exeter). Catherine is the BradfordUniversity Healthy Ageing Theme Lead for Wolfson Centre for Applied HealthResearch. She is a member of the NIHR Dementias Portfolio Development Group andthe Older People’s theme of the NIHR Applied Research Collaboration (ARC),Yorkshire & Humber. She is also a Fellow of Advance HE. Catherine’s research focuses on improving thequality of life of those affected by dementia. First, through gaining a betterunderstanding of the experiences of those affected by dementia and the factorsthat affect their quality of life. Second, by developing interventions toimprove the quality of life of those affected by dementia. She has a particularinterest in the experiences of carers, positive experiences in providing careand relationship dynamics. She has expertise in cohorts, qualitativemethodology, and patient and public involvement. She is involved in majorresearch studies. Current projects include: · Co-PI on the DYNAMIC study whichfocuses on improving social care planning and provision for people with youngonset dementia and their families.· Co-I on the longstanding IDEAL programme, which is thelargest cohort study of living well with dementia in Great Britain.· Co-I on the ENLIVEN study which works with smallbusinesses to make the wellbeing benefits of outdoor activity more accessibleto older people with cognitive impairment.Co-I on the INCLUDE study. This study explores the impact of the COVID-19 pandemic on people with dementia and carers who are taking part in the IDEAL progarmme. Co-I on the MAGNET study which is developing an intervention to support medication self-management in dementia. Co-I on the SIDECAR study which focuses on the implementation of a carer quality of life measure in carer organisations. Catherine has also involved in a involved in a number of other networks:· Peer-reviewer for the World Health Organisation Global Dementia Observatory. Editor for Cochrane Dementia and Cognitive Improvement group.
Teaching
Details on teaching interests, highlights and modules are available for Dr. Catherine Quinn as follows:
Teaching interests
Current Module leadershipDEM7024-C: Psychosocial and pharmacological support (PostgraduateCertificate for Practitioners with Advanced or Extended roles in dementia) DEM7025-C: Post-diagnostic support and living well with dementia (MSc Advanced Dementia Studies) Previous module leadershipDEM7014-C (maternity cover): Evidence Appraisal and Synthesis (MSc Advanced Dementia Studies)DEM7009-C People with dementia and their families: Communication and inclusion (MSc Advanced Dementia Studies)MSc Dissertation studentsI supervise a number of dissertation students on the MSc Advanced Dementia Studies. Recent projects include:The use of robotic animals within care homes.The use of reflective team discussions in improvingdementia careCurrent PhD students2021: Associate supervisor for Jia Yen Eng PhD on "Supporting the well-being of care staff in Singapore"2019: Principal supervisor for Alison Ellwood. PhD on "The influence of psychological and social factors on the lived experience of people living with co-existent physical frailty and cognitive impairment".Previous PhD students2019-2022: Associate supervisor for Oladayo Bifarin. PhD entitled "Supporting carers in the Chinese workforce'"2018-2020: Principal supervisor for Suzanne Hill. PhD entitled 'Investigating the quality and continuity of medication management when people living with dementia move be tween the care home and hospital setting' 2012- 2015: Associate supervisor for Carol Opdebeeck. PhD entitled ‘Cognitive Reserve, mood and cognitive function in later life’
Teaching highlights
Publications
There are 104 publications involving or that are attributed to Dr. Catherine Quinn. They are listed as:
- book chapter (3)
- online database (1)
- peer reviewed journal (98)
- published report (1)
- reviews (1)
Book Chapter
| Title | Year | Publication name | Journal | Volume | Pages | Authors | Editors | ISSN | Publisher | DOI | Location |
|---|---|---|---|---|---|---|---|---|---|---|---|
| Positive experiences in dementia caregiving | 2016 | Positive Psychology Approaches to Dementia | Positive Psychology Approaches to Dementia | Quinn, C. | Jessica Kingsley | ||||||
| Interpretative phenomenological analysis | 2008 | Nursing Research: Designs and Methods | Nursing Research: Designs and Methods | Quinn, C. & Clare, L. | Elsevier | ||||||
| Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice | 2020 | Awarecare: an awareness-based staff training intervention to improve quality of life for care home residents with severe dementia | Awarecare: an awareness-based staff training intervention to improve quality of life for care home residents with severe dementia | Quinn, C. & Clare, L. | Jessica Kingsley |
Online Database
| Title | Year | Publication name | Journal | Volume | Pages | Authors | Editors | ISSN | Publisher | DOI | Location |
|---|---|---|---|---|---|---|---|---|---|---|---|
| Conducting interviews with people with dementia and their caregivers | 2017 | 10.4135/9781526404855 |
Peer Reviewed Journal
| Title | Year | Publication name | Journal | Volume | Pages | Authors | Editors | ISSN | Publisher | DOI | Location |
|---|---|---|---|---|---|---|---|---|---|---|---|
| AwareCare: development and validation of an observational measure of awareness in people with severe dementia | 2012 | Neuropsychological Rehabilitation | 22 | Clare, L.; Whitaker, R.; Quinn, Catherine; Jelley, H.; Hoare, Z.; Woods, B.; Downs, Murna G.; Wilson, B.A. | |||||||
| 'It's in the eyes': How family members and care staff understand awareness in people with severe dementia | 2014 | Aging and Mental Health | 18 | 260 - 268 | Quinn C.;Clare L.;Jelley H.;Bruce E.;Woods B. | 1360-7863 | 10.1080/13607863.2013.827627 | ||||
| AwareCare: A pilot randomized controlled trial of an awareness-based staff training intervention to improve quality of life for residents with severe dementia in long-term care settings | 2013 | International Psychogeriatrics | 25 | 128 - 139 | Clare L.;Whitaker R.;Woods R.;Quinn C.;Jelley H.;Hoare Z.;Woods J.;Downs M.;Wilson B. | 1041-6102 | 10.1017/S1041610212001226 | ||||
| A pilot randomized controlled trial of a self-management group intervention for people with early-stage dementia (The SMART study). | 2016 | International Psychogeriatrics | 28 | Quinn C;Toms G;Jones C;Brand A;Edwards RT;Sanders F;Clare L; | 1741-203X | 10.1017/S1041610215002094 | |||||
| Current Practice in the Referral of Individuals with Suspected Dementia for Neuroimaging by General Practitioners in Ireland and Wales. | 2016 | PLoS ONE | 11 | Ciblis AS;Butler ML;Quinn C;Clare L;Bokde AL;Mullins PG;McNulty JP; | 1932-6203 | 10.1371/journal.pone.0151793 | |||||
| "I Don't Think of It As An Illness": Illness Representations in Mild to Moderate Dementia | 2016 | Journal of Alzheimer's disease : JAD | 51 | Clare, L.; Quinn, Catherine; Jones, I.R.; Woods, R.T. | |||||||
| Bilingualism, executive control, and age at diagnosis among people with early-stage Alzheimer's disease in Wales. | 2016 | Journal of Neuropsychology | 10 | Clare L;Whitaker CJ;Craik FI;Bialystok E;Martyr A;Martin-Forbes PA;Bastable AJ;Pye KL;Quinn C;Thomas EM;Gathercole VC;Hindle JV; | 1748-6653 | 10.1111/jnp.12061 | |||||
| Executive control in older Welsh monolinguals and bilinguals | 2016 | Journal of Cognitive Psychology | 28 | 412 - 426 | Clare L.;Whitaker C.;Martyr A.;Martin-Forbes P.;Bastable A.;Pye K.;Quinn C.;Thomas E.;Mueller Gathercole V.;Hindle J. | 2044-5911 | 10.1080/20445911.2016.1148041 | ||||
| Balancing needs: The role of motivations, meanings and relationship dynamics in the experience of informal caregivers of people with dementia | 2015 | Dementia | 14 | 220 - 237 | Quinn C.;Clare L.;Woods R. | 1471-3012 | 10.1177/1471301213495863 | ||||
| How does cognitive reserve impact on the relationships between mood, rumination, and cognitive function in later life? | 2015 | Aging and Mental Health | 19 | Opdebeeck C;Nelis SM;Quinn C;Clare L; | 1364-6915 | 10.1080/13607863.2014.962005 | |||||
| Beliefs About Dementia: Development and Validation of the Representations and Adjustment to Dementia Index (RADIX) | 2018 | The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry | 26 | Quinn, Catherine; Morris, R.G.; Clare, L. | 10.1016/j.jagp.2018.02.004 | ||||||
| Reflections on PPI from the 'Action on Living Well: Asking You' advisory network of people with dementia and carers as part of the IDEAL study. | 2018 | Dementia | 17 | Litherland R;Burton J;Cheeseman M;Campbell D;Hawkins M;Hawkins T;Oliver K;Scott D;Ward J;Nelis SM;Quinn C;Victor C;Clare L; | 1741-2684 | 10.1177/1471301218789309 | |||||
| Living well with dementia: a systematic review and correlational meta-analysis of factors associated with quality of life, well-being and life satisfaction in people with dementia. | 2018 | Psychological Medicine | 48 | Martyr A;Nelis SM;Quinn C;Wu YT;Lamont RA;Henderson C;Clarke R;Hindle JV;Thom JM;Jones IR;Morris RG;Rusted JM;Victor CR;Clare L; | 1469-8978 | 10.1017/S0033291718000405 | |||||
| Protocol for the IDEAL-2 longitudinal study: following the experiences of people with dementia and their primary carers to understand what contributes to living well with dementia and enhances active life. | 2018 | BMC Public Health | 18 | Silarova B;Nelis SM;Ashworth RM;Ballard C;Bieńkiewicz M;Henderson C;Hillman A;Hindle JV;Hughes JC;Lamont RA;Litherland R;Jones IR;Jones RW;Knapp M;Kotting P;Martyr A;Matthews FE;Morris RG;Quinn C;Regan J;Rusted JM;van den Heuvel EA;Victor CR;Wu YT;Clare L; | 1471-2458 | 10.1186/s12889-018-6129-7 | |||||
| Social Support and Attitudes to Aging in Later Life. | 2017 | International Journal of Aging and Human Development | 84 | Lamont RA;Nelis SM;Quinn C;Clare L; | 1541-3535 | 10.1177/0091415016668351 | |||||
| A Review of Self-Management Interventions for People With Dementia and Mild Cognitive Impairment. | 2016 | Journal Of Applied Gerontology : The Official Journal Of The Southern Gerontological Society | 35 | Quinn C;Toms G;Anderson D;Clare L; | 1552-4523 | 10.1177/0733464814566852 | |||||
| Is cognitive lifestyle associated with depressive thoughts and self-reported depressive symptoms in later life? | 2016 | European Journal of Ageing | 13 | 63 - 73 | Opdebeeck C;Quinn C;Nelis SM;Clare L; | 1613-9372 | 10.1007/s10433-015-0359-7 | ||||
| A systematic narrative review of support groups for people with dementia. | 2015 | International Psychogeriatrics | 27 | Toms GR;Clare L;Nixon J;Quinn C; | 1741-203X | 10.1017/S1041610215000691 | |||||
| Help yourself: perspectives on self-management from people with dementia and their caregivers. | 2015 | Qualitative Health Research | 25 | Toms GR;Quinn C;Anderson DE;Clare L; | 1049-7323 | 10.1177/1049732314549604 | |||||
| Self-management in early-stage dementia: a pilot randomised controlled trial of the efficacy and cost-effectiveness of a self-management group intervention (the SMART study). | 2014 | Trials | 15 | Quinn C;Anderson D;Toms G;Whitaker R;Edwards RT;Jones C;Clare L; | 1745-6215 | 10.1186/1745-6215-15-74 | |||||
| Improving the experience of dementia and enhancing active life--living well with dementia: study protocol for the IDEAL study. | 2014 | Health and Quality of Life Outcomes | 12 | Clare L;Nelis SM;Quinn C;Martyr A;Henderson C;Hindle JV;Jones IR;Jones RW;Knapp M;Kopelman MD;Morris RG;Pickett JA;Rusted JM;Savitch NM;Thom JM;Victor CR; | 1477-7525 | 10.1186/s12955-014-0164-6 | |||||
| Care staff and family member perspectives on quality of life in people with very severe dementia in long-term care: a cross-sectional study. | 2014 | Health and Quality of Life Outcomes | 12 | Clare L;Quinn C;Hoare Z;Whitaker R;Woods RT; | 1477-7525 | 10.1186/s12955-014-0175-3 | |||||
| Negotiating the balance: the triadic relationship between spousal caregivers, people with dementia and Admiral Nurses. | 2013 | Dementia | 12 | Quinn C;Clare L;McGuinness T;Woods RT; | 1741-2684 | 10.1177/1471301212437780 | |||||
| What predicts whether caregivers of people with dementia find meaning in their role? | 2012 | International Journal of Geriatric Psychiatry | 27 | Quinn C;Clare L;Woods RT; | 1099-1166 | 10.1002/gps.3773 | |||||
| The impact of relationships, motivations, and meanings on dementia caregiving outcomes. | 2012 | International Psychogeriatrics | 24 | Quinn C;Clare L;McGuinness T;Woods RT; | 1741-203X | 10.1017/S1041610212000889 | |||||
| The impact of the quality of relationship on the experiences and wellbeing of caregivers of people with dementia: a systematic review. | 2009 | Aging and Mental Health | 13 | Quinn C;Clare L;Woods B; | 1364-6915 | 10.1080/13607860802459799 | |||||
| A pilot randomized controlled trial of a self-management group intervention for people with early-stage dementia (The SMART study). | 2015 | International Psychogeriatrics | 28 | Quinn C;Toms G;Jones C;Brand A;Edwards RT;Sanders F;Clare L; | 10.1017/S1041610215002094 | ||||||
| A self-management group for people with dementia | 2016 | Journal of Dementia Care | Quinn, C.;Toms, G.;Davies, S.;Davies, M.;Clare, L.; | ||||||||
| Does cognitive reserve moderate the association between mood and cognition? A systematic review | 2015 | Reviews in Clinical Gerontology | Opdebeeck, C.;Quinn, C.;Nelis, S.M.;Clare, L.; | 10.1017/S0959259815000155 | |||||||
| The experience of providing care in the early stages of dementia: an interpretative phenomenological analysis. | 2008 | Aging and Mental Health | 12 | Quinn C;Clare L;Pearce A;van Dijkhuizen M; | 10.1080/13607860802380623 | ||||||
| A Comprehensive Model of Factors Associated with Capability to "live Well" for Family Caregivers of People Living with Mild-to-Moderate Dementia: Findings from the IDEAL Study | 2018 | Alzheimer Disease and Associated Disorders | Clare L.;Wu Y.;Quinn C.;Jones I.;Victor C.;Nelis S.;Martyr A.;Litherland R.;Pickett J.;Hindle J.;Jones R.;Knapp M.;Kopelman M.;Morris R.;Rusted J.;Thom J.;Lamont R.;Henderson C.;Rippon I.;Hillman A.;Matthews F. | 0893-0341 | 10.1097/WAD.0000000000000285 | ||||||
| Inequalities in living well with dementia-The impact of deprivation on well-being, quality of life and life satisfaction: Results from the improving the experience of dementia and enhancing active life study | 2018 | International Journal of Geriatric Psychiatry | 0 | Wu, Y.-T.; Clare, L.; Jones, I.R.; Martyr, A.; Nelis, S.M.; Quinn, Catherine; Victor, C.R.; Lamont, R.A.; Rippon, I.; Matthews, F.E.; Improving the experience of Dementia and Enhancing Active Life (IDEAL) study | 10.1002/gps.4998 | ||||||
| Dualities of dementia illness narratives and their role in a narrative economy | 2018 | Sociology of Health and Illness | 40 | Hillman, A.; Jones, I.R.; Quinn, Catherine; Nelis, S.M.; Clare, L. | |||||||
| Living well with dementia: a systematic review and correlational meta-analysis of factors associated with quality of life, well-being and life satisfaction in people with dementia | 2018 | Psychological Medicine | 48 | Martyr, A.; Nelis, S.M.; Quinn, Catherine; Wu, Y.-T.; Lamont, R.A.; Henderson, C.; Clarke, R.; Hindle, J.V.; Thom, J.M.; Jones, I.R.; Morris, R.G.; Rusted, J.M.; Victor, C.R.; Clare, L. | 10.1017/S0033291718000405 | ||||||
| Reflections on PPI from the ‘Action on Living Well: Asking You’ advisory network of people with dementia and carers as part of the IDEAL study | 2018 | Dementia | 17 | Litherland, R.; Burton, J.; Cheeseman, M.; Campbell, D.; Hawkins, M.; Hawkins, T.; Oliver, K.; Scott, D.; Ward, J.; Nelis, S.M.; Quinn, Catherine; Victor, C.; Clare, L. | |||||||
| Illness representations in caregivers of people with dementia | 2017 | Aging and Mental Health | 21 | Quinn, Catherine; Jones, I.R.; Clare, L. | |||||||
| Protocol for the IDEAL-2 longitudinal study: following the experiences of people with dementia and their primary carers to understand what contributes to living well with dementia and enhances active life | 2018 | BMC Public Health | 18 | Silarova, B.; Nelis, S.M.; Ashworth, R.M.; Ballard, C.; Bienkiewicz, M.; Henderson, C.; Hillman, A.; Hindle, J.V.; Hughes, J.C.; Lamont, R.A.; Litherland, R.; Jones, I.R.; Jones, R.W.; Knapp, M.; Kotting, P.; Martyr, A.; Matthews, F.E.; Morris, R.G.; Quinn, Catherine; Regan, J.; Rusted, J.M.; van den Heuval, E.A.; Victor, C.R.; Wu, Y.-T.; Clare, L. | doi:10.1186/s12889-018-6129-7 | ||||||
| The impact of comorbidity on the quality of life of people with dementia: findings from the IDEAL study | 2019 | Age and Ageing | 48 | Nelis, S.M.; Wu, Y.-T.; Matthews, F.E.; Martyr, A.; Quinn, Catherine; Rippon, I.; Rusted, J.; Thom, J.M.; Kopelman, M.D.; Hindle, J.V.; Jones, R.W.; Clare, L. | https://doi.org/10.1093/ageing/afy155 | ||||||
| A Comprehensive Model of Factors Associated with Capability to "live Well" for Family Caregivers of People Living with Mild-to-Moderate Dementia: Findings from the IDEAL Study | 2019 | Alzheimer Disease and Associated Disorders | 33 | Clare, L.; Wu, Y.-T.; Quinn, Catherine; Jones, I.R.; Victor, C.R.; Nelis, S.M.; Martyr, A.; Litherland, R.; Pickett, J.A.; Hindle, J.V.; Jones, R.W.; Knapp, M.; Kopelman, M.D.; Morris, R.G.; Rusted, J.M.; Thom, J.M.; Lamont, R.A.; Henderson, C.; Rippon, I.; Hillman, A.; Matthews, F.E. | doi:10.1097/WAD.0000000000000285 | ||||||
| Influence of Positive Aspects of Dementia Caregiving on | 2018 | The Gerontologist | n/a | Quinn, C., & Toms, G. | 10.1093/geront/gny168 | ||||||
| Influence of positive and negative dimensions of dementia caregiving on caregiver well-being and satisfaction with life: Findings from the IDEAL study | 2019 | The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry | n/a | Catherine Quinn, Sharon M Nelis, Anthony Martyr, Christina Victor, Robin G. Morris, and Linda Clare on behalf of the IDEAL study team | https://doi.org/10.1016/j.jagp.2019.02.005 | ||||||
| The relationship between perceived functional difficulties and the ability to live well with mild-to-moderate dementia: Findings from the IDEAL programme. | 2019 | International Journal of Geriatric Psychiatry | Martyr A;Nelis SM;Quinn C;Rusted JM;Morris RG;Clare L; ; | 1099-1166 | 10.1002/gps.5128 | ||||||
| Caregiver influences on 'living well' for people with dementia: Findings from the IDEAL study. | 2019 | Aging and Mental Health | Quinn C;Nelis SM;Martyr A;Morris RG;Victor C;Clare L; | 1364-6915 | 10.1080/13607863.2019.1602590 | ||||||
| The impact of relationship quality on life satisfaction and well-being in dementia caregiving dyads: findings from the IDEAL study. | 2019 | Aging and Mental Health | Rippon I;Quinn C;Martyr A;Morris R;Nelis SM;Jones IR;Victor CR;Clare L; | 1364-6915 | 10.1080/13607863.2019.1617238 | ||||||
| The impact of motivations and meanings on the wellbeing of caregivers of people with dementia: a systematic review. | 2010 | International Psychogeriatrics | 22 | Quinn C;Clare L;Woods RT; | 1741-203X | 10.1017/S1041610209990810 | |||||
| Psychological predictors of 'living well' with dementia: findings from the IDEAL study. | 2019 | Aging and Mental Health | Lamont RA;Nelis SM;Quinn C;Martyr A;Rippon I;Kopelman MD;Hindle JV;Jones RW;Litherland R;Clare L; | 1364-6915 | 10.1080/13607863.2019.1566811 | ||||||
| A comprehensive model of factors associated with subjective perceptions of "living well" with dementia: findings from the IDEAL study | 2019 | Alzheimer Disease and Associated Disorders | 33 | Clare, L.; Wu, Y-T.; Jones, I.R.; Victor, C.R.; Nelis, S.M.; Martyr, A.; Quinn, Catherine; Litherland, R.; Pickett, J.A.; Hindle, J.V.; Jones, R.W.; Knapp, M.; Kopelman, M.D.; Morris, R.G.; Rusted, J.M.; Thom, J.M.; Lamont, R.A.; Henderson, C.; Rippon, I.; Hillman, A.; Matthews, F.E. | doi:10.1097/WAD.0000000000000286 | ||||||
| Caregivers' beliefs about dementia: findings from the IDEAL study | 2019 | Psychology and Health | 0 | Quinn, Catherine; Jones, I.R.; Martyr, A.; Nelis, S.M.; Morris, R.G.; Clare, L.; IDEAL Study Team | https://doi.org/10.1080/08870446.2019.1597098 | ||||||
| Self-esteem, self-efficacy and optimism as psychological resources among family caregivers of people with dementia: findings from the IDEAL study | 2019 | International Psychogeriatrics | 31 | Lamont, R.A., Quinn, C., Nelis, S.M., Martyr, A., Rusted, J.M., Hindle, J.V., Longdon, B., Clare, L., & on behalf of the IDEAL study team. | 10.1017/S1041610219001236 | ||||||
| Use and costs of services and unpaid care for people with mild-to-moderate dementia: Baseline results from the IDEAL cohort study | 2019 | Alzheimer'S And Dementia: Translational Research And Clinical Interventions | 5 | 685 - 696 | Henderson C.;Knapp M.;Nelis S.;Quinn C.;Martyr A.;Wu Y.;Jones I.;Victor C.;Pickett J.;Hindle J.;Jones R.;Kopelman M.;Matthews F.;Morris R.;Rusted J.;Thom J.;Clare L. | 2352-8737 | 10.1016/j.trci.2019.09.012 | ||||
| All the world's a stage: Accounting for the dementia experience - insights from the IDEAL study | 2019 | Qualitative Research | N/A | Hillman A.;Jones I.;Quinn C.;Nelis S.;Lamont R.;Clare L. | 1468-7941 | 10.1177/1468794119893607 | |||||
| Improving the quality of insulin prescribing for people with diabetes being discharged from hospital | 2019 | Bain, A.; Silcock, Jonathan; Kavanagh, S.; Quinn, Gemma L.; Fonseca, I. | |||||||||
| Factors associated with self and informant ratings of quality of life, well being and life satisfaction in people with mild to moderate dementia results from the Improving the experience of Dementia and Enhancing Active Life programme | 2020 | Age and Ageing | 0 | Yu-Tzu Wu, Sharon M Nelis, Catherine Quinn, Anthony Martyr, Ian R Jones, Christina R Victor, Martin Knapp, Catherine Henderson, John V Hindle, Roy W Jones, Michael D Kopelman, Robin G Morris, James A Pickett, Jennifer M Rusted, Jeanette M Thom, Rachael Litherland, Fiona E Matthews, Linda Clare, the IDEAL Programme team, , | 10.1093/ageing/afz177 | ||||||
| The prevalence and predictors of loneliness in caregivers of people with dementia findings from the IDEAL programme | 2020 | Aging and Mental Health | 0 | Victor CR Rippon I Quinn C Nelis SM Martyr A Hart N Lamont R Clare L | 1360-7863 | 10.1080/13607863.2020.1753014 | |||||
| What are the benefits of using robotic animals with people with dementia living in residential care settings | 2021 | Journal of Dementia Care | 0 | Small. S. Quinn, C. | Journal of Dementia Care | ||||||
| Involvement in meetings and events Tips for good practice | 2020 | Journal of Dementia Care | 28 | Mason, C., Quinn, C., Andrews, M., Parveen, S., & Litherland, R. | |||||||
| Living Alone with Mild-To-Moderate Dementia: Findings from the IDEAL Cohort. | 2020 | Journal of Alzheimer's Disease | 78 | Clare L;Martyr A;Henderson C;Gamble L;Matthews FE;Quinn C;Nelis SM;Rusted J;Thom J;Knapp M;Hart N;Victor C; | 1875-8908 | 10.3233/JAD-200638 | |||||
| Stressors and coping mechanisms of family care-givers of older relatives living with long-term conditions in mainland China: A scoping review of the evidence. | 2021 | AGEING & SOCIETY | 1 | Bífárìn, O., Quinn, C., Breen, L., Wu, C., Ke, M., Yu, L., & Oyebode, J | Cambridge University Press | doi:10.1017/S0144686X21000817 | |||||
| The perceived availability of neighbourhood green and blue spaces and its association with quality of life in people with dementia results from the Improving the Experience of Dementia and Enhancing Active Life (IDEAL) study | 2021 | Social Psychiatry and Psychiatric Epidemiology | 0 | Wu, Y.T., Clare, L., Jones, I. R., Nelis, S. M., Quinn, C., Martyr, A., Victor, C. R., Lamont, R. A., Rippon, I., & Matthews, F | |||||||
| The role of subjective social status in living well for carers of people with dementia findings from the IDEAL study | 2021 | International Journal of Care and Caring | 5 | Victor, C., Rippon, I., Quinn, C., Nelis, S. M., Martyr, A., Matthews, F. E., & Clare, L. | |||||||
| Developing supportive local communities Perspectives from people with dementia and carers participating in the IDEAL programme | 2021 | Journal of Aging and Social Policy | 0 | Quinn. C., Hart, N., Hendrson, C., Litherland, R., Pickett., J. & Clare, L. | |||||||
| Methods and approaches for enhancing communication with people with moderate-to-severe dementia that can facilitate their inclusion in research and service evaluation findings from the IDEAL programme | 2022 | Dementia | 0 | Collins, R., Hunt, A., Quinn, C., Martyr, A., Pentecost, C. & Clare, L. | |||||||
| Impact of COVID-19 on ‘living well’ with mild-to-moderate dementia in the community findings from the IDEAL cohort | 2021 | Journal of Alzheimer's disease : JAD | 85 | Clare, L., Martyr, A., Gamble, L.D., Pentecost, C., Collins, R., Dawson, E., Hunt, A., Parker, S., Allan, L., Burns, A., Hillman, A., Litherland, R., Quinn, C., Mathews, F.E., & Victor, C. | doi: 10.3233/JAD-215095 | ||||||
| Living with dementia under COVID-19 restrictions Coping and support needs among people with dementia and carers from the IDEAL cohort | 2021 | Ageing and Society | 0 | Gareth O’Rourke, Claire Pentecost, Eleanor van den Heuvel, Christina Victor, Catherine Quinn, Alexandra Hillman, Rachael Litherland and Linda Clare | |||||||
| Community Ageing Research 75+ (CARE75+) REMOTE study: a remote model of recruitment and assessment of the health, well-being and social circumstances of older people | 2021 | BMJ Open | 11 | Brown, L., Heaven, A., Quinn, C., Goodwin, V., Chew-Graham, C., Mahmood, F., Hallas, S., Jacob, I., Brundle, C., Best, K., Daffu-O'Reilly, A., Spilsbury, K., Young, T. A., Hawkins, R., Hanratty, B., Teale, E., & Clegg, A. | |||||||
| The use and costs of paid and unpaid care for people with dementia longitudinal findings from the IDEAL cohort programme | 2022 | Journal of Alzheimer's Disease | 86 | Henderson, C., Knapp, M., Martyr, A., Gamble, L. D., Nelis, S. M., Quinn, C., Pentecost, C., Collins, R., Wu, Y-. T., Jones, I. R., Victor, C. R., Pickett, J. A., Jones, R. W., Matthews, F. E., Morris, R. G., Rusted, J., Thom, J. M., Clare, L. | https://doi.org/10.3233/JAD-215117 | ||||||
| Does awareness of condition help people with mild-to-moderate dementia to live well? | 2021 | BMC Geriatrics | 21 | Alexander, C. M., Martyr, A., Gamble, L. D., Savage, S. A., Quinn, C., Morris, R. G., Collins, R., & Clare, L. | |||||||
| Living well with dementia: what is possible and how to promote it | 2021 | International Journal of Geriatric Psychiatry | 0 | Quinn, C., Pickett, J. A., Litherland, R., Morris, R., Martyr, A., & Clare, L | |||||||
| Psychological processes in adapting to dementia: illness representations among the IDEAL cohort | 2021 | Psychology and Aging | 0 | Clare, L., Gamble, L., Martyr, A., Quinn, C., Litherland, R., Morris, R. G., Jones, I.R., & Matthews, F. E | 10.1037/pag0000650 | ||||||
| Psychological and social factors associated with coexisting frailty and cognitive impairment: A systematic review | 2021 | Research on Aging | 0 | Ellwood, A., Mountain, G. & Quinn, C. | |||||||
| Longitudinal trajectories of quality of life among people with mild-to-moderate dementia- a latent growth model approach with IDEAL cohort study data | 2022 | Journals of Gerontology - Series B Psychological Sciences and Social Sciences | 0 | Clare, L., Gamble, L.D., Martyr, A., Sabatini, S., Nelis, S.M., Quinn, C., Pentecost, C., Victor, C., Jones, R.W., Jones, I.R., Knapp, M., Litherland, R., Morris, R.G., Rusted, J.M., Thom, J.M., Collins, R., Henderson, C., & Matthews, F.E., on behalf of the IDEAL study team | |||||||
| Limited receipt of support services among people with mild-to-moderate dementia- findings from the IDEAL cohort | 2022 | International Journal of Geriatric Psychiatry | 37 | Jayden O. van Horik Rachel Collins, Anthony Martyr, Catherine Henderson, Roy W Jones, Martin Knapp, Catherine Quinn, Jeanette M. Thom, Christina Victor and Linda Clare on behalf of the IDEAL Programme Team | |||||||
| Minimal Impact of COVID-19 Pandemic on the Mental Health and Wellbeing of People Living With Dementia Analysis of Matched Longitudinal Data From the IDEAL Study | 2022 | Frontiers in Psychiatry | 0 | Sabatini, S., Bennett, H. Q., Martyr, A., Collins, R., Gamble, L. D., Matthews, F. E., Pentecost, C., Dawson, E., Hunt, A., Parker, S., Allan, L., Burns, A., Litherland, R., Quinn, C., & Clare, L. | https://doi.org/10.3389/fpsyt.2022.849808 | ||||||
| Positive experiences in dementia caregiving: findings from the IDEAL programme | 2022 | AGEING & SOCIETY | 0 | Quinn, C., Toms, G., Rippon, I., Nelis, S.M., Henderson, C., Morris, R.G., Rusted, J.M., Thom, J.M., van den Heuvel, E.A., Victor, C., & Clare, L., on behalf of the IDEAL programme team | |||||||
| Impact of COVID-19 on carers of people with dementia in the community: Findings from the British IDEAL cohort | 2022 | International Journal of Geriatric Psychiatry | 37 | Quinn, C., Gamble, L. D., Parker, S., Martyr, A., Collins, R., Victor, C., Dawson, E., Hunt, A., Pentecost, C., Allan, L., & Clare, L. | |||||||
| Predictors of awareness of functional ability in people with dementia: the contribution of personality, cognition, and neuropsychiatric symptoms. Findings from the IDEAL programme. | 2022 | Dementia and Geriatric Cognitive Disorders | 0 | Martyr, A., Gamble, L.D., Nelis, S.M., Collins, R., Alexander, C.M., Morris, R.G., Quinn, C., Pentecost, C., Rusted, J.M., Victor, C., Thom, J.M., Matthews, F.E., Clare, L., & on behalf of the IDEAL study team. | |||||||
| Effects of social restrictions on people with dementia and carers during the pre-vaccine phase of the COVID-19 pandemic Experiences of IDEAL cohort participants | 2022 | Health and Social Care in the Community | 0 | Pentecost, C., Collins, R., Stapley, S., Victor, C., Quinn, C., Hillman, A., Litherland, R., Allan, L., Clare, Li. | |||||||
| Interventions for self-management of medicines for community dwelling people with dementia, mild cognitive impairment and family carers: a systematic review | 2022 | Age and Ageing | 51 | Powell, C; Tomlinson, J; Quinn, C; Fylan, B | https://doi.org/10.1093/ageing/afac089 | ||||||
| A comparison of well-being of carers of people with dementia and their ability to manage before and during the COVID-19 pandemic: findings from the IDEAL study | 2022 | American Journal of Alzheimer's Disease | 88 | Laura D Gamble, Sophie Parker, Catherine Quinn, Holly Q Bennett, Anthony Martyr, Serena Sabatini, Claire Pentecost, Rachel Collins, Eleanor Dawson, Anna Hunt, Louise Allan, Alistair Burns, Rachael Litherland, Christina Victor, Fiona E Matthews, Linda Clare | |||||||
| Innovations in dementia and ageing care | 2023 | Frontiers In Rehabilitation Sciences | Quinn, C., Wolverson, E., & Mountain, G | ||||||||
| Navigating the COVID-19 pandemic two years on: experiences of carers of people with dementia from the British IDEAL cohort | 2023 | International Journal of Care and Caring | Collins, R., Dawson, E., Pentecost, C., Stapley, S., Quinn, C., Charlwood, C., Allan, L., Victor, C., & Clare, L. | 10.1332/239788223x16893442145108 | |||||||
| Provision of Outdoor Nature-Based Activity for Older People with Cognitive Impairment: A Scoping Review from the ENLIVEN Project | 2023 | Health and Social Care in the Community | Collins, R., Owen, S., Opdebeeck, C., Ledingham, K., Connell, J., Quinn, C., Page, S., Clare, L., & Lu, N. | https://doi.org/10.1155/2023/4574072 | |||||||
| Caring beyond capacity’ during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort | 2023 | International Journal of Care and Caring | Stapley, S., Pentecost, C., Collins, R., Quinn, C., Dawson, E., Thom, J. M., & Clare, L. | https://doi.org/10.1332/239788221X16819328227036 | |||||||
| The precariousness of living with, and caring for people with, dementia: Insights from the IDEAL programme. | 2023 | Social Science and Medicine | 331 | Hillman A;Jones IR;Quinn C;Pentecost C;Stapley S;Charlwood C;Clare L; | 1873-5347 | 10.1016/j.socscimed.2023.116098 | |||||
| Evaluating 'living well' with mild-to-moderate dementia: Co-production and validation of the IDEAL My Life Questionnaire. | 2023 | Dementia | Clare L;Pentecost C;Collins R;Martyr A;Litherland R;Morris RG;Quinn C;Gamble LD;Sabatini S;Victor C; | 1741-2684 | 10.1177/14713012231188502 | ||||||
| Living with dementia during the coronavirus pandemic: insights into identity from the IDEAL cohort | 2022 | AGEING & SOCIETY | Stapley, S., Pentecost, C., Collins, R., Quinn, C., Dawson, E., Morris, R., Sabatini, S., Thom, J. & Clare, L. | ||||||||
| Exploration of meaning, motivation, and preparedness to care amongst the one-child policy generation in China. | 2023 | International Journal of Geriatric Psychiatry | 38 | Bifarin O;Quinn C;Breen L;Yu L;Oyebode J; | 1099-1166 | 10.1002/gps.5887 | |||||
| Navigating the coronavirus pandemic 2 years on: Experiences of people with dementia from the British IDEAL cohort. | 2023 | Dementia | Dawson E;Collins R;Pentecost C;Stapley S;Quinn C;Charlwood C;Victor C;Clare L; | 1741-2684 | 10.1177/14713012231158215 | ||||||
| Attitudes toward own aging and cognition among individuals living with and without dementia: findings from the IDEAL programme and the PROTECT study. | 2022 | BMC Geriatrics | 22 | Sabatini S;Martyr A;Ukoumunne OC;Ballard C;Collins R;Pentecost C;Rusted JM;Quinn C;Anstey KJ;Kim S;Corbett A;Brooker H;Clare L; | 1471-2318 | 10.1186/s12877-022-03336-5 | |||||
| Profiles of social, cultural, and economic capital as longitudinal predictors of stress, positive experiences of caring, and depression among spousal carers of people with dementia. | 2022 | Aging and Mental Health | 0 | Sabatini S;Martyr A;Gamble LD;Jones IR;Collins R;Matthews FE;Victor CR;Quinn C;Pentecost C;Thom JM;Clare L; | 1364-6915 | 10.1080/13607863.2022.2098920 | |||||
| Health conditions in spousal caregivers of people with dementia and their relationships with stress, caregiving experiences, and social networks: longitudinal findings from the IDEAL programme | 2024 | BMC Geriatrics | 24 | Sabatini, S., Martyr, A., Hunt, A., Gamble, L. D., Matthews, F. E., Thom, J. M., Jones, R. W., Allan, L., Knapp, M., Quinn, C., Victor, C., Pentecost, C., Rusted, J. M., Morris, R. G., & Clare, L. | https://doi.org/10.1186/s12877-024-04707-w | ||||||
| Methods and approaches to facilitate inclusion of the views, perspectives and preferences of people with moderate-to-severe dementia in research: a mixed-methods systematic review | 2023 | International journal of older people nursing | Collins, R., Martyr, A., Hunt, A., Quinn, C., Pentecost, C., Hughes, J. C., & Clare L. | ||||||||
| Resilience in caregivers of people with mild-to-moderate dementia: findings from the IDEAL cohort. | 2023 | BMC Geriatrics | 23 | Martyr A;Rusted JM;Quinn C;Gamble LD;Collins R;Morris RG;Clare L; | 1471-2318 | 10.1186/s12877-023-04549-y | |||||
| Dyadic influences on awareness of condition in people with dementia: Findings from the 1 IDEAL cohort | 2023 | Frontiers in Aging Neuroscience | Alexander, C. M., Martyr, A., Gamble, L. D., Hunt, A., Quinn, C., Pentecost, C., Morris, R. G., & Clare L. | ||||||||
| Dyadic perspectives on loneliness and social isolation among people with dementia and spousal carers: findings from the IDEAL programme. | 2023 | Aging and Mental Health | Rippon I;Victor CR;Martyr A;Matthews FE;Quinn C;Rusted JM;Jones RW;Collins R;van Horik J;Pentecost C;Allan L;Clare L; ; | 1364-6915 | 10.1080/13607863.2023.2286618 | ||||||
| Social care planning and provision for people with young onset dementia and their families: Protocol for the DYNAMIC study. | 2024 | PLoS ONE | 19 | Quinn C;Young H;Gridley K;Stamou V;Mason C;Oyebode J; | 1932-6203 | 10.1371/journal.pone.0297747 | |||||
| Living well with dementia: An exploratory matched analysis of minority ethnic and white people with dementia and carers participating in the IDEAL programme. | 2024 | International Journal of Geriatric Psychiatry | 39 | Victor CR;Gamble LD;Pentecost C;Quinn C;Charlwood C;Matthews FE;Clare L; | 1099-1166 | 10.1002/gps.6048 | |||||
| A participatory approach to understand what might be most meaningful to people living with dementia in a positive psychology intervention. | 2024 | Aging and Mental Health | Jackman V;Wolverson E;Clarke C;Quinn C; | 1364-6915 | 10.1080/13607863.2023.2299967 |
Published Report
| Title | Year | Publication name | Journal | Volume | Pages | Authors | Editors | ISSN | Publisher | DOI | Location |
|---|---|---|---|---|---|---|---|---|---|---|---|
| Information and support interventions for informal caregivers of people with dementia | 2007 | 10.1002/14651858.CD006440 |
Reviews
| Title | Year | Publication name | Journal | Volume | Pages | Authors | Editors | ISSN | Publisher | DOI | Location |
|---|---|---|---|---|---|---|---|---|---|---|---|
| Information and support interventions for informal caregivers of people with dementia | 2007 | Cochrane Database of Systematic Reviews | Nelis S.;Quinn C.;Clare L. | 1469-493X | 10.1002/14651858.CD006440 |